Register your interest now for the Patient Partnership Index 2024

To register your interest for the next round of the Index, please fill in your details below. We will contact you with instructions to enter before January 2024.

The Index is open to patient partnership projects in the following areas:

  • Patient Advocacy
  • Communications
  • Market Access and Uptake
  • Clinical Trials
  • Research and Development
You can opt out at any time and we will not share or sell your contact details to third parties.

If you have any questions, check our FAQs for useful advice and guidance. Should your question not be answered in the FAQs, please contact us at and we will respond to you as soon as possible.

“We hope the GOLD standard will help to give further exposure to Pompe disease within the industry.
It was a great pleasure and privilege for all at Pompe Support Network to be part of the Pompe & Circumstance project and we hope to continue using the resources generated from it for many years.
We wish Sanofi many congratulations for their Gold Patient Partnership Index award.

Allan Muir, chair of pompe support network